Name
Lila Everest

Brain Tumor Type
Craniopharyngioma

Date of Diagnosis
8th Nov 2018

Age Group (If you are a caregiver/family member please check Caregiver/Family Member)
Children: 12 and under

Category
Jewelry & Textiles

Artist Statement (include type of art, techniques & materials used, what it means to you)
Cranio Colours.

This represents how my life is intertwined with my tumour, and how they have both changed over time.

I carefully wove this using different colours of yarn in a cardboard frame, to show my different moods and aspects of my life, as they have changed with my tumour.

Thank you for looking at my art, from Lila.

Bio (include your age, tumor type and date of diagnosis)
Hi, I’m Lila from Brighton in England.

I was diagnosed with a craniopharyngioma in Nov 2018, aged 5 and had surgery and proton radiotherapy.
After several years of stability, my tumour started to grow again during lockdown.

In the last 18 months, I have had 2 craniotomies and started immunotherapy. During this time I have had to deal with the sudden loss of most of my vision and some appetite difficulties, alongside the usual pituitary deficits that come with a craniopharyngioma.

Art has helped me enormously when I have had difficult times over the past 5 years.