Evan
Entry Category:
Heritage & Heart
Child's Birth Year2012
State/Province/TerritoryCalifornia
NICU Hospital for my journeyCHOC at Mission Hospital
My NICU Graduate's JourneyEvan was born with a rare genetic disorder called Tuberous Sclerosis Complex (TSC). He had a large, benign tumor compromising his heart function. He had to endure several tests to confirm his diagnosis, and to insure that his heart was functioning properly. Luckily, his NICU stay was short, and he was able to come home after only 6 days. The NICU nurses were wonderful!
What makes you proud of your NICU graduate?Even with all that Evan has endured over the past 13 years, he is always such a happy boy with many friends at school. He is thriving even though he has daily seizures! We so proud of his strength and perseverance!
Weight at Birth (lbs. or Grams)6 lbs 9 oz
Weeks Gestation37 weeks
Time spent in the NICU (Specify Number of Days, Months, or Years)6 days